| Here are advocacy groups you can contact for in-depth specific information about a caregiving issue or concern. The links will take you directly to the organization's website. |
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Family 411 -
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Arthritis Foundation Eastern Pennsylvania Chapter -
Serving over 20 counties, the Chapter educates the public and individuals living with arthritis about the disease, the importance of appropriate treatment, and supports individuals to take personal control of their arthritis.
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National Arthritis Foundation -
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions. Founded in 1948, with headquarters in Atlanta, the Arthritis Foundation has multiple service points located throughout the country. The foundation helps people take control of arthritis by providing public health education; pursuing public policy and legislation; and conducting evidence-based programs to improve the quality of life for those living with arthritis.
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National Alliance for the Mentally Ill -
NAMI is the National Alliance on Mental Illness, the nation’s largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 1,100 local communities across the country. NAMI is dedicated to the eradication of mental illnesses and to the improvement of the quality of life for persons of all ages who are affected by mental illnesses.
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National Hospice and Palliative Care Organization -
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.
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Aging and Adult Services -
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American Cancer Society -
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. Headquartered in Atlanta, Georgia, the ACS has state divisions and more than 3,400 local offices. Learn more about ACS, what we do, and our plans for the future by clicking on this link.
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Guardian Nurses -
Guardian Nurses Healthcare Advocates is committed to improving our clients’ experiences with today’s healthcare system by providing advocacy services and managing care for people of all ages with acute injuries, chronic illnesses and ongoing health-related needs. By communicating, intervening, and advocating on our clients’ behalf with care providers, insurers and support resources, Guardian Nurses makes it easier for clients to find their way safely and efficiently through the healthcare maze.
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Caring Connections -
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.
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National Family Caregivers Association -
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.
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United Spinal Association -
United Spinal Association is a national 501(c)(3) nonprofit membership organization formed in 1946 by paralyzed veterans. Its mission is to improve the quality of life of Americans with spinal cord injuries and disorders (SCI/D). For more than sixty (60) years, we have committed our energy and our talents to improving the lives of individuals with a spinal cord injury or disease. Our initiatives, in promoting inclusion, improving access, fostering independence, enhancing mobility, and demanding equality, along with our commitment to member service, has helped to improve the quality of life and to create opportunities for our members and all people with spinal cord injuries or disorders.
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National Alzheimer's Association -
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
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Alzheimer's Foundation of America -
Our mission is ”to provide optimal care and services to individuals confronting dementia, and to their caregivers and families—through member organizations dedicated to improving quality of life.”
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ALS Association -
To lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
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National Multiple Sclerosis Society -
The National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn't.
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ARCH National Respite Network -
An advocacy organization that is a service of the Chapel Hill Training Outreach Project, Inc.. The site also includes a national respite locator service.
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